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What is Advance Care Planning?

Christina Marsack-Topolewski, PhD, MSW, LMSW

August 15, 2023

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Question

What is advance care planning?

Answer

Advance care planning is the development of a care plan for when an individual cannot take part fully in their own decision making. This process is helpful to prepare current and future wishes regarding both medical care as well as the place of care. To plan for an individual's long-term needs,  various aspects must be considered, including the person's wishes for their future, residential decisions, financial considerations, occupational and recreational preferences, supportive measures for daily living and life course transitions, and maintaining a social support network. These dimensions are crucial for comprehensive planning in terms of advance care planning.

In addition, it is important to note that while there are federally legislated Medicaid requirements for individuals with IDD to have person-centered plans, there is no requirement for advance care planning. However, combining person-centered planning with advance care planning can lead to a more robust and comprehensive approach to caring for adults with IDD.

 

This Ask the Expert is an edited excerpt from the webinar,  Advance Care Planning for Individuals with Intellectual and Developmental Disabilities: Navigating Planning for the Future, presented by Christina Marsack-Topolewski, PhD, MSW, LMSW

 


christina marsack topolewski

Christina Marsack-Topolewski, PhD, MSW, LMSW

Dr. Christina Marsack-Topolewski is an associate professor of Social Work in the College of Health and Human Services at Eastern Michigan University. She received a bachelor of science in Special Education from Wayne State University, specializing in Cognitive Impairments. She trained under a specialized fellowship at the University of Michigan, receiving her master’s in Social Work and specializing in aging from the University of Michigan. Dr. Marsack-Topolewski received her PhD in Social Work with a dual title in Gerontology from Wayne State University. She has worked with individuals with various intellectual and developmental disabilities for over 20 years. Her research focuses on individuals with IDDs, their caregivers, advance care planning, service delivery, and service utilization. She has over 50 publications in national and international journals, mainly focusing on individuals with IDDs, advance care planning, caregiving, and aging. In addition, she has presented her work locally, nationally, and internationally. Dr. Marsack-Topolewski has led multiple grant-funded programs tailoring services to individuals with IDDs, older adults, and chronic illnesses. In 2019, she was appointed to the National Task Group on Intellectual Disability and Dementia Practices. She serves as both a board member and co-chair of Membership Affairs. Over the past three years, she has provided testimony at the state level (Michigan) to advocate for two house bills that would provide protections against exploitation for vulnerable adults, such as individuals with IDDs.


Related Courses

Advance Care Planning for Individuals with Intellectual and Developmental Disabilities: Navigating Planning for the Future
Presented by Christina Marsack-Topolewski, PhD, MSW, LMSW
Video

Presenter

Christina Marsack-Topolewski, PhD, MSW, LMSW
Course: #1873Level: Intermediate1.02 Hours
  'Provided guidelines, identified barriers, and resources for ACP'   Read Reviews
Individuals with intellectual and developmental disabilities (IDD) are often forgotten when it comes to conversation, planning, and services in adulthood. This webinar provides a framework for understanding the multi-faceted nature of advance care planning, barriers to advance care planning, and reasons for advance care planning to support individuals with IDD.

Self-Care as a Practitioner: How to Care for Yourself While Caring for Others
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Christina Marsack-Topolewski, PhD, MSW, LMSW
Course: #1976Level: Intermediate1.07 Hours
  'I really enjoyed the examples'   Read Reviews
This webinar is designed to explore various strategies aimed at enhancing the quality of care provided to clients while ensuring the well-being of the professionals themselves. It acknowledges the challenges that social workers, counselors, and other helping professionals face while addressing the need to mitigate the risks of burnout and fatigue. Participants will learn valuable insights to support them in enhancing, supporting, and restoring their clients' functioning. This includes fostering resilience, managing stress, and maintaining healthy boundaries. Moreover, this webinar will equip practitioners with practical tools and techniques essential for sustaining their effectiveness and overall well-being in their professional practice. By integrating these strategies into their daily work, they can elevate the standard of care for their clients while cultivating a healthier and more sustainable approach to their own professional journey.

Social Isolation and Loneliness: Who's At Risk and How to Help
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Presenter

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Course: #2112Level: Intermediate1.53 Hours
  'The subject matter as I have clients who deal with this alot'   Read Reviews
Social isolation and loneliness have been recognized challenges in recent decades, and the COVID-19 pandemic provided further visibility of these realities. This course offers a look at who is at risk for loneliness, the signs of loneliness, and effective ways to reduce social isolation and loneliness while promoting overall mental and physical health outcomes for clients and consumers. Implications for practice are discussed.

Understanding Cognitive Behavioral Therapy as a Therapeutic Modality in Supporting Individuals with Autism Spectrum Disorders
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Course: #2119Level: Intermediate1.07 Hours
  'lots of info'   Read Reviews
Individuals with autism spectrum disorder may commonly experience anxiety, depression, and/or a host of other mental health conditions. Due to the complexity and co-morbidity often associated with autism spectrum disorder, cognitive-behavioral therapy may be an effective therapeutic modality for some individuals with autism. This webinar explores cognitive-behavioral therapy techniques and strategies to consider when working with people with autism.

Supporting Students with Autism in a School Setting
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Course: #2120Level: Intermediate1.08 Hours
  'the personal stories she used for examples were relatable and helpful'   Read Reviews
Students with autism often face varying and unique challenges in a school setting. This webinar provides strategies to support students with autism in school settings.

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