Advance care planning is the development of a care plan for when an individual cannot take part fully in their own decision making. This process is helpful to prepare current and future wishes regarding both medical care as well as the place of care. To plan for an individual's long-term needs, various aspects must be considered, including the person's wishes for their future, residential decisions, financial considerations, occupational and recreational preferences, supportive measures for daily living and life course transitions, and maintaining a social support network. These dimensions are crucial for comprehensive planning in terms of advance care planning.
In addition, it is important to note that while there are federally legislated Medicaid requirements for individuals with IDD to have person-centered plans, there is no requirement for advance care planning. However, combining person-centered planning with advance care planning can lead to a more robust and comprehensive approach to caring for adults with IDD.
Dr. Christina Marsack-Topolewski is an associate professor of Social Work in the College of Health and Human Services at Eastern Michigan University. She received a bachelor of science in Special Education from Wayne State University, specializing in Cognitive Impairments. She trained under a specialized fellowship at the University of Michigan, receiving her master’s in Social Work and specializing in aging from the University of Michigan. Dr. Marsack-Topolewski received her PhD in Social Work with a dual title in Gerontology from Wayne State University. She has worked with individuals with various intellectual and developmental disabilities for over 20 years. Her research focuses on individuals with IDDs, their caregivers, advance care planning, service delivery, and service utilization. She has over 50 publications in national and international journals, mainly focusing on individuals with IDDs, advance care planning, caregiving, and aging. In addition, she has presented her work locally, nationally, and internationally. Dr. Marsack-Topolewski has led multiple grant-funded programs tailoring services to individuals with IDDs, older adults, and chronic illnesses. In 2019, she was appointed to the National Task Group on Intellectual Disability and Dementia Practices. She serves as both a board member and co-chair of Membership Affairs. Over the past three years, she has provided testimony at the state level (Michigan) to advocate for two house bills that would provide protections against exploitation for vulnerable adults, such as individuals with IDDs.
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